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Tracking the Hill's briefings, receptions, workshops, and more.



Tracking the Hill's briefings, luncheons, receptions, and more.
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Congressional Briefing and Lunch on Sickle Cell Trait

  • HVC-200, Capitol Visitor Center (map)

Date: Wed. September 5
Time: 12:00 PM – 1:30 PM
Location: US Capitol Visitor Center, Room HVC-200

Lunch will be served

Sickle cell trait (SCT) is not a mild form of sickle cell disease (SCD).  Having SCT simply means that a person carries a single gene for SCD and can pass this gene along to their children.  People with SCT usually do not have any of the symptoms of SCD and live a normal life.  SCT is more common among people whose ancestors come from Africa, the Mediterranean region, Middle East, and South Asia, but anyone can have SCT.

This briefing will present a general overview about trait; the importance of knowing your status and what it means to have trait, the current state of SCT research, and a personal story of one family’s journey with trait.


  • Welcome, Introductions and Sickle Cell Trait 101:  What You Need to Know 
    Alexis Thompson, MD, MPH, Ann & Robert H. Lurie Children’s Hospital of Chicago and Feinberg School of Medicine, Northwestern University; President, American Society of Hematology
  • A Family’s Perspective on Sickle Cell Trait
    Derek Robertson, MBA, JD, and Shanta Robertson, MA
  • The Current State of Sickle Cell Trait
    Rakhi Prakash Naik, MD, MHS, Johns Hopkins Medicine


Questions? Email Foster Curry at FCurry@hematology.org

Cosponsored by: American Society of Hematology and Sickle Cell Disease Association of America

(This is a widely attended event)

Click here for a printable version of this invitation