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The Value of the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP) for those with Neurofibromatosis (NF)

  • 2212 Rayburn House Office Building (map)

 Reps. Gallagher and Pocan invite you to a briefing on 

The Value of the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP) for those with Neurofibromatosis (NF)

Friday January 11, 2019
11:00am-12:00pm
2212 Rayburn House Office Building

 

Dear Colleague,

Currently, there are no effective treatments and no cure for neurofibromatosis (NF), a genetic disorder affecting 1 in 3,000 people. Through research conducted by the NF Research Program within the CDMRP, research at the National Institutes of Health (NIH), and other public and private research partnerships, we know we will find solutions for NF patients as well as 175 million Americans suffering from traumatic brain injury, cognitive delays, various cancers, persistent pain, nerve damage and amputations.

Please join us for a briefing in collaboration with the Littlest Tumor Foundation on the value of the CDMRP to finding treatments for NF and other deadly diseases.

Speakers:

  • Dr. Roger Packer, MD, Children's National Medical Center 

  • Renie Moss, NF Parent

  • Gregg Erickson, NF Network

  • Naba Bora, Ph.D., CDMRP-NFRP, DoD

  • Dr. Andrea Gross, MD, National Cancer Institute 

  • Jill A. Morris, Ph.D., Program Director, Nuerogenetics National Institute of Neurological Disorders and Stroke, NIH

  • Annette Bakker, Ph.D., President and Chief Scientific Officer, Children's Tumor Foundation 

When: Friday, January 11, 2019
Where: 2212 Rayburn House Office Building
Refreshments will be served. We look forward to seeing you there.

 

Sincerely, 

Mike Gallagher
Member of Congress